Alzheimer Europe
Non-profit NGO
Location	Senningerberg, Luxembourg
Type	Non-Profit Organization (NGO)
Website	https://www.alzheimer-europe.org/
Focus Areas	Dementia Research, Policy Advocacy, Human Rights, Prevention, Caregiver Support
Founded	1990
Member Organizations	41 national Alzheimer's associations from 36 European countries
Executive Director	Jean Georges

Alzheimer Europe

Overview

Alzheimer Europe is a non-profit non-governmental organization (NGO) that serves as the umbrella organization for 41 national Alzheimer’s associations across 36 European countries^{1Alzheimer Europe. About Us.Open reference}. Founded in 1990, the organization is dedicated to improving the quality of life for people with dementia and their families across Europe through advocacy, research support, public awareness campaigns, and policy coordination.

The organization maintains its headquarters in Senningerberg, Luxembourg, and operates as a coordinating body for national dementia associations throughout Europe. Alzheimer Europe plays a pivotal role in shaping European dementia policy, fostering cross-border research collaboration, and representing the voices of people affected by dementia at the European Union level.

Mission and Values

Alzheimer Europe’s mission is to:

• Involve people affected by dementia in all aspects of the organization’s work, ensuring that those living with dementia and their caregivers have a direct voice in policy discussions and research priorities

• Challenge stigma and promote public awareness about dementia across European societies

• Advance human rights and champion diversity and inclusion in dementia care and research

• Make dementia a priority in European and national policy agendas through strategic advocacy

• Foster research and innovation by coordinating European research efforts and facilitating data sharing

• Promote equal access to quality diagnosis, treatment, care and support across all European countries

The organization operates according to principles of transparency, inclusivity, and evidence-based advocacy. Its governance structure ensures that the perspectives of people living with dementia are central to all decision-making processes.

Governance

Board of Directors

Alzheimer Europe is governed by a board of directors composed of representatives from member organizations across Europe:

• Chairperson: Maria do Rosário Zincke dos Reis (Portugal)

• Vice-Chairperson: Mario Possenti (Italy)

• Honorary Treasurer: Marco Blom (Netherlands)

• Honorary Secretary: Lorène Gilly (France)

Executive Leadership

• Executive Director: Jean Georges — leads the organization’s day-to-day operations and strategic direction

• Project Officers: Christophe Bintener, Cindy Birck — manage specific research and advocacy projects

• Communications Officer: Kate Boor Ellis — handles public communications and media relations

Advisory Bodies

The organization benefits from two key working groups that provide expert input:

• European Working Group of People with Dementia — ensures the lived experience of people with dementia informs all organizational activities

• European Dementia Carers Working Group — represents the interests and perspectives of family caregivers

Key Activities

Research Coordination

Alzheimer Europe serves as a critical coordination hub for dementia research across Europe. The organization maintains involvement in numerous European Union-funded research projects through the EU Joint Programme — Neurodegenerative Disease Research (JPND) and other collaborative initiatives^{2Alzheimer Europe involvement in EU projectsOpen reference}.

Research Initiatives:

• Research Insights Webinar Series — a public webinar program launched to disseminate cutting-edge dementia research findings to patients, caregivers, and the general public. The series covers topics ranging from clinical trial results to care interventions

• Dementia Evidence Tool — an online resource providing access to evidence-based information about dementia interventions, treatments, and care practices^{3Dementia Evidence ToolOpen reference}

• NEURONET — participation in the European Alzheimer’s disease research network that accelerates drug development and shares data across European research institutions^{4NEURONET - European Alzheimer's disease research networkOpen reference}

• Dementia Programme Inventory — a comprehensive database of dementia research and care programs across Europe^{5Dementia Programme InventoryOpen reference}

Policy and Advocacy

Alzheimer Europe maintains a strong presence in European policy discussions:

• European Alzheimer’s Alliance — a cross-party group of Members of the European Parliament who advocate for dementia-friendly policies

• EU Transparency Register (37399743690-65) — official registration enabling formal participation in EU legislative processes

• European Dementia Consensus Network — collaboration with other European organizations to develop unified policy positions^{6European Dementia Consensus Network}

• National Dementia Strategies — support for the development and implementation of national dementia strategies across European countries

Conferences

Alzheimer Europe organizes the premier annual dementia conference in Europe:

• 36th Alzheimer Europe Conference (36AEC) 2026 — scheduled for Dublin, Ireland, themed "Sláinte: Building momentum in dementia through policy, research, and partnership"^{736th Alzheimer Europe Conference (36AEC) Dublin 2026Open reference}

• 35th Alzheimer Europe Conference 2025 — held in Bologna, Italy, with a special conference supplement published documenting research presentations

• These conferences bring together researchers, clinicians, policymakers, caregivers, and people with dementia to share knowledge and foster collaboration

Publications

• Dementia in Europe Magazine — the organization’s flagship publication, with the 50th issue released in February 2026^{8Dementia in Europe magazineOpen reference}

• European Carers’ Report — comprehensive analysis of the experiences and needs of dementia caregivers across Europe^{9European Carers' Report 2024Open reference}

• European Alzheimer Survey — examining experiences and expectations of people with dementia and their carers^{10European Alzheimer’s Survey: Experiences and expectations of people with dementia and their carersOpen reference}

• Prevalence of Dementia in Europe 2025 — updated epidemiological data on dementia prevalence across European nations^{2Alzheimer Europe involvement in EU projectsOpen reference}0

Equality and Human Rights

Alzheimer Europe is committed to ensuring dementia is recognized as a public health priority with equity considerations:

• Dementia and Equality — advocacy work addressing disparities in dementia care and support across different population groups^{2Alzheimer Europe involvement in EU projectsOpen reference}1

• European Code of Ethics for Dementia — development and promotion of ethical guidelines for dementia care and research^{2Alzheimer Europe involvement in EU projectsOpen reference}2

• Human Rights Approach — integration of human rights frameworks into dementia policy advocacy

Member Organizations

Alzheimer Europe coordinates national Alzheimer’s associations from the following 36 countries:

Region	Countries
Western Europe	Austria, Belgium, France, Germany, Luxembourg, Netherlands, Switzerland
Northern Europe	Denmark, Estonia, Finland, Iceland, Ireland, Latvia, Lithuania, Norway, Sweden, United Kingdom
Southern Europe	Cyprus, Greece, Italy, Malta, Portugal, Spain
Central Europe	Croatia, Czech Republic, Hungary, Poland, Romania, Serbia, Slovakia, Slovenia
Eastern Europe	Bulgaria, Moldova, Russia, Turkey, Ukraine

This extensive network enables Alzheimer Europe to represent the collective interests of millions of people affected by dementia across the continent.

European Collaboration

EU Projects

Alzheimer Europe participates in numerous EU-funded research and policy projects:

• JPco-fuND — Joint Programming on Neurodegenerative Diseases

• NEURONET — Networking for Efficient Transition from Academic Research to Ageing

• ROSA — Research on Alzheimer’s and other dementias in Europe

• Various other JPND initiatives

International Partnerships

The organization maintains relationships with:

• Alzheimer’s Disease International (ADI) — the global umbrella organization

• European Federation of Neurological Associations

• European Patients’ Forum

• Age Platform Europe

Resources and Services

Alzheimer Europe provides various resources for people affected by dementia and professionals:

• Intercultural Support — resources tailored for diverse ethnic communities across Europe

• Ukraine-Specific Resources — support materials for displaced persons affected by dementia

• Multilingual Information — content available in multiple European languages

• Caregiver Resources — training materials and support guides for family caregivers

• Healthcare Professional Resources — clinical guidelines and best practice documents

Impact and Influence

Alzheimer Europe has played a critical role in:

1. Raising Awareness — campaigns that have increased public understanding of dementia across Europe

2. Policy Influence — contributions to the development of national dementia strategies in multiple countries

3. Research Advancement — facilitation of cross-border research collaboration and data sharing

4. Patient Empowerment — ensuring people with dementia have a voice in research and policy

5. Caregiver Support — development of resources and support networks for family caregivers

Contact Information

• Address: 5B, Heienhaff, L-1736 Senningerberg, Luxembourg

• Phone: +352-29 79 70

• Fax: +352-29 79 72

• Email: info@alzheimer-europe.org

• Website: https://www.alzheimer-europe.org/

Related Organizations

National Associations

• Alzheimer’s Association — United States

• Alzheimer’s Research UK — United Kingdom

• Alzheimer’s Society — United Kingdom

Related Topics

• Alzheimer’s Disease

• Dementia Care

• European Dementia Research